Auto-immunities?
Feb. 1st, 2013 11:40 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
autumnluv143I am a person who needs to have information to be well informed about what goes on with me. And, let's face it... my body is strange and always making me guess. I could honestly do without all the drama... stupid body. Anyway, I've been doing research regarding the Pyoderma Gangrenosum and other problems that seem to be associated with it. I'm not talking about Wiki searches. I have been looking into case studies regarding the condition and then the experiences that other people with the condition have had. Then there are the side-effects of the effective drug that I'm on to solve that condition to look into. I am having such a good time trying to figure out what's truth in regards to me and what is laying on that border of hypochondriac thinking.
Just before my last Remicade treatment, I had a few days of my shoulder, knee, hip, wrists, hands and feet joints seize up and freeze. I was almost completely unable to move from weakness and pain. I forced myself to manage my day because I can't not work at the moment. Within an hour of the infusion, nearly all my pain was gone. The treatments are set up to keep the medicine in your system for long periods of time. I started with one, second at 2 weeks, 4 weeks, 6 weeks and then every 8 weeks. Well on my first round with an 8 week time frame, I pushed it back a week. That's probably the reason for all the muscle and joint weakness/pain. Well it's only been 3.5 weeks since my treatment and I'm starting to have joint pain again. The crazy thing about this pain is that I will wake up one morning with intense pain in one joint or another, it will be nearly all I can concentrate on for roughly two days and then it will go away. And it's without tenderness or any remnants of pain in the area. I have a feeling that by the end of February I am going to be effing miserable. Man oh man do I not want to be. I HATE having to have help from others.
I'm really only writing about this here because I need to keep some kind of record about this stuff and I know I won't write it down. I won't talk much about it on Facebook because I can't stand to whine for long. And I don't want people to perceive me as one of those that their "issues" are all they are capable of talking about. Based on something that my sister said, I am looking into the possibility of Candida. It's an auto-immune disease that I certainly qualify for based on the symptoms and scoring. However, Candida tends to be present when neutrophils are acting up or not present. Mine are present, just fighting with each other. So I'm not sure of the neutrophils (causing PG) doing what they're doing could/would result in this thing. I am going to bring it up with the MD's that I see at the end of the month, but in the mean time I may try the Candida diet and see if I start to feel better all over. And maybe I can lose weight and get my overall health in better order. I can't get pregnant until I do and I desperately want to be pregnant before 2014. Knowing my history with medical complications, I don't want to add more risk by getting pregnant as an older woman. Although, I have been thinking about passing on my genetics to a child and whether or not that would be irresponsible. I haven't voiced that to Brandon. I guess I probably should though.
Just before my last Remicade treatment, I had a few days of my shoulder, knee, hip, wrists, hands and feet joints seize up and freeze. I was almost completely unable to move from weakness and pain. I forced myself to manage my day because I can't not work at the moment. Within an hour of the infusion, nearly all my pain was gone. The treatments are set up to keep the medicine in your system for long periods of time. I started with one, second at 2 weeks, 4 weeks, 6 weeks and then every 8 weeks. Well on my first round with an 8 week time frame, I pushed it back a week. That's probably the reason for all the muscle and joint weakness/pain. Well it's only been 3.5 weeks since my treatment and I'm starting to have joint pain again. The crazy thing about this pain is that I will wake up one morning with intense pain in one joint or another, it will be nearly all I can concentrate on for roughly two days and then it will go away. And it's without tenderness or any remnants of pain in the area. I have a feeling that by the end of February I am going to be effing miserable. Man oh man do I not want to be. I HATE having to have help from others.
I'm really only writing about this here because I need to keep some kind of record about this stuff and I know I won't write it down. I won't talk much about it on Facebook because I can't stand to whine for long. And I don't want people to perceive me as one of those that their "issues" are all they are capable of talking about. Based on something that my sister said, I am looking into the possibility of Candida. It's an auto-immune disease that I certainly qualify for based on the symptoms and scoring. However, Candida tends to be present when neutrophils are acting up or not present. Mine are present, just fighting with each other. So I'm not sure of the neutrophils (causing PG) doing what they're doing could/would result in this thing. I am going to bring it up with the MD's that I see at the end of the month, but in the mean time I may try the Candida diet and see if I start to feel better all over. And maybe I can lose weight and get my overall health in better order. I can't get pregnant until I do and I desperately want to be pregnant before 2014. Knowing my history with medical complications, I don't want to add more risk by getting pregnant as an older woman. Although, I have been thinking about passing on my genetics to a child and whether or not that would be irresponsible. I haven't voiced that to Brandon. I guess I probably should though.
